While the events of 2020 are unprecedented and many of our plans have been disrupted, we have remained resolute in our mission to help our young heart warriors and find a “cure” to make a heart transplant last a lifetime. Although it felt for some as if life as we knew it came to a halt, the harsh reality remains that today a transplant still only lasts on average 17 years and the clock is ticking. Thankfully, because of the generous support of donors like you, Enduring Hearts currently has fifteen innovative research studies underway aimed at changing this statistic. Through this research, our goal is to give these children the opportunity to live, longer, healthier lives, and YOU are helping us make this possible! We know that through this continued investment in research, we can get there together. To view our research, click here.
Enduring Hearts recognizes the importance of understanding how race plays a role in health outcomes for children and this year has highlighted so many inequalities in society. While pediatric heart transplantation impacts all children, studies show that racial disparities exist specifically in mortality rates of non-white children with CHD’s as well for those who are waiting for a transplant. This is simply not acceptable. It is crucial for us to help elevate those voices for disadvantaged children with heart failure. In response, Enduring Hearts has partnered with the Pediatric Heart Transplant Society to fully fund an investigative study to examine these healthcare inequalities and importantly devise mechanisms to address these issues.
Earlier this year, because of the COVID-19 pandemic, we added an emergency food program. We helped over 200 families by providing grocery store gift cards. This program was unplanned, unfunded, but desperately needed by them. We did not want families to decide between paying for medicines or putting food on their tables. We provide hope for families through our research and tangible support through these essential programs.
As we close out this year and look forward to 2021, we are so grateful for the generous support of our many donors, thankful to our heart families for sharing their transplant stories with us, and feel incredibly humbled and inspired by the passion and drive that our Enduring Hearts researchers and doctors bring to helping us move one step closer to making a transplant lasts a lifetime.
We thank you again for all that you do and wish you and your family a very Happy New Year and Happy Holidays!
Chief Executive Officer